Posts Tagged Lysosomal Storage Disorders (LSDs)

Arian’s Story: A Reason to Advocate on Rare Disease Day

Arian with his Elaprase treatment for MPS II/Hunter syndrome. Courtesy photo.

When their son Arian was three years old, Sib and Debjani Chowdhury noticed he had difficulty carrying his school bag. Shortly after, his teachers reported that he couldn’t lift his hand during a school exercise. He continued to lose motor abilities and some of his facial features began to develop atypically, prompting his parents to consult a physician. After seeing […]

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