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Transforming the Lives of Cystic Fibrosis Patients in Lebanon

News

Rare Disease

Rita and her mother are seen as Rita receives cystic fibrosis treatment through Anera's partnership with Direct Relief. (Courtesy photo)
By ANERA

Editor’s note: This article was originally published by Anera here.

Cystic fibrosis is a life-threatening genetic disease affecting the lungs and digestive system. In Lebanon, access to treatment is limited, leaving families to face overwhelming financial and emotional burdens. Many patients endure frequent hospitalizations — sometimes several times every month — just to manage daily symptoms.

In 2024, Anera, in partnership with Direct Relief, launched a life-changing program to make essential cystic fibrosis treatment available in Lebanon. The initiative has brought hope and life-saving treatment to patients who previously had little chance of accessing this critical care.

For Rita, a 29-year-old woman from Douris Village in Bekaa, the hospital was a constant part of her life:

“The hospital was part of my childhood. I used to visit multiple times every month. My lungs were constantly infected, and everyday tasks like walking or even breathing became a battle.”

“During my search for a cure, I discovered a medication in the United States that could change everything — but it was far beyond what my family could afford,” Rita continued. “My father had passed away, and my mother was caring for me and my sister, who also has cystic fibrosis. It felt impossible to access this life-saving treatment.”

After months of intensive coordination with the Ministry of Public Health, the Minister himself, specialist physicians, and the American University of Beirut Medical Center, Anera, through the support of Direct Relief, was finally able to secure this medication for Lebanon at the national level. Crucially, it is now available for the long term, ensuring sustained access for patients who rely on it.

“Seven hours after taking the medication, my body started clearing mucus like never before. In just a few days, I could breathe normally, my appetite returned, and I regained strength.”

“From visiting the hospital multiple times every month, I now need only one visit a year. My sister and I call it ‘the miracle drug.’ This medicine gave me a new breath and a chance to finally pursue my dream of studying media.”

Since the program’s launch, many cystic fibrosis patients in Lebanon have experienced improved health and renewed hope for the future. Since the program’s launch in December 2024, it has brought together all identified cystic fibrosis patients in Lebanon and supported the establishment of the country’s first cystic fibrosis registry.

This registry aims not only to document all known patients but also to reach those who have not yet been informed about the project. As a result, many cystic fibrosis patients have experienced improved health outcomes and a renewed sense of hope for the future.

“To all cystic fibrosis patients, my message is simple: do not give up. Do not let sadness consume you. Your family and community can be your strength. Be strong … You are not alone.”

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